Saturday, December 31, 2011

Review of 2011 - The Good, Bad and Ugly!

The Good........
Jeff and Joshua went on holiday to America for the first time with Dad and Sandra,
Joshua is off to America on a soccer scholarship.
Benjamin did okay with his GCSE's and has stayed on for sixth form.
Benjamin went to France to see Robert, Jane and family.
Ella has got a lovely carer 6 hours a month :)
I have loved being at home, decorating the house, trying new recipes, crafting, altering, etc.....
Annual Center Parcs with my dearest friends.
Went to the lovely Creative Heart and Soul weekend.
Did Reiki Level 1 and 2; Hopi Ear Candling; and an Angel course.
Jeff and his brother talking again.

The Bad.......
Money, cos I'm at home so much (equal and opposite reaction!)- but then who isn't struggling at the moment.
Joshua's American uni has cost 2k already.
Ella's school didn't complete her DLA report in time and so the DLA and CA have stopped!
Joe's CICA claim is still ongoing - no wonder the governments (no specific party) have no money - this has taken nearly 3 years so far!
SS wasting 18 months of our life to tell us that they think Ella isn't ready to foster - this despite not having met her once in that 18 months!

The Ugly.....
Well, has to be the nightmare we went through at the beginning of the year with the school and social services.
Ella's first major fit.
Joshua's suspected heart attack.
Me trying to slice my toe off.
Horsefly bite that put me out of action for over a week.
Friday, December 30, 2011
Jeff and Ella making and decorating the gingerbread house. Well, Jeff did the building work and Ella did the prettyfying! Oops, gender specific roles there LOL And ironically enough she doesn't even like gingerbread - but made up for it with the sweeties!

Dad and Sandra came up on the 27th, with our Christmas presents. This bag was my present. Sandra had seen it in Roma when they were there a few weeks ago and thought it was so me. I would so have to agree! I couldn't stop grinning, picking it up and stroking it, bit sad really LOLWednesday Jeff and I went for another walk around Swinley Forest, without Ella this time. It's amazing how much further one can walk without Ella!
Thursday we had to take Ella to John Radcliffe for a check up. Her EEG result is ok, no deterioration in the epilespy, so that's good :) They also gave her an ECG just to check the drop fits hadn't been misdiagnosed. ECG was fine :) They would though like us to film her drops. Easier said than done! Took Ella to Pizza Hut afterwards for a treat. Last night watched Little Shop of Horrors. I love that film! Will never forget when I saw the live show and the ending was different - was most unimpressed!
DWP phoned and confirmed they can't recommence the DLA and CA until the school have 'done their bit.' With this is mind, you can imagine how blue the air was when we found out the phone bill was £150 .......for one month!! Mobile calls now barred.
Today Joshua is 19, dear Lord, my kids are getting old!
Tuesday, December 27, 2011

Have had a relaxing Christmas. Seen Mum - Dad and Sandra - Ricki and Kim - Daniel and Shona. Had Christmas lunch at home. Went to Church and the Crematorium. Jeff had time off work. Been for walks. Had friends round. Jeff and I didn't buy each other any presents, money's too tight atm, but when we have a few pennies (ie have paid Mum and Dad back the 2k and the DLA is sorted out!) then I would like a better kitchen mixer and Jeff needs a new phone - aren't we exciting people! Did get the best present from Dad and Sandra though - a handbag Sandra got in Rome - I couldn't stop grinning - will put a photo up when I get a chance and you can all drool and be jealous! Loving Christmas this year :)
Friday, December 23, 2011
Ella with Aunty Joy - Godmother - and Uncle Ian.
Vicky took Ella to Father Christmas. The police car parked in a disabled bay annoyed me - just because you can doesn't mean you should! The dress was a birthday present from her Aunty Joy.
Orla and Martha :) I just love, love, love this picture of Orla with Jeff!
Jeff's family gathering - all the brothers and sisters. And Ella with Uncle Steven - Ella's Godfather.
Nonna came up to see Joshua's Showcase football match for the American coaches. Homemade pressies for escot, teacher and SSA's. Handmade tags - shame you can't see all the glittery-ness! Ella with her Personal Assistant Vicky.

Christmas decs - no really?! Handmade the rag wreaths,
Ella's youth club disco and also her 13th birthday which we had a party for.

What else? Oh, Joe managed to get 2 black eyes during Community Service! Seriously! Breaking up a wooden pallet a piece of wood flew up and hit him smack on the nose. Jeff and I were spitting feathers, but Joe doesn't want to complain cos he likes the fella. Okay, but no safety goggles? Joe might not have been quite so amenable if a splinter had ended up in his eye. But he's 20, so his decision.

Ella's school play was lovely. Ben's school report was the best we have ever had for him. Ella's school delayed the DLA letter request so much that we now have no money from DLA or Carer's Allowance. Freaking great. Social services were investigating my moan on 2nd December. No news yet. But seeing as they've mucked us about for the past 18 months it was expecting too much I suppose for them to reply promptly!

Think that's it, hope anyone reading this has a peaceful Christmas xx
Sunday, December 04, 2011

November Roundup

Not sure where November went, anybody? Anyhow, in brief. Had to call 999 for Joshua this time. Was like he was having a heart attack - scared the crap out of me. First responder said his EEG was throwing up something, so called for an ambulance to take him to A&E. After several fraught hours the doctor decided that it was something called an oesaphageal (?sp) spasm. Apparently mimics a heart attack in pain and style - but thank God it wasn't. On an aside, whilst Josh was on the monitors and entinox in the house, the ambulance pulled up. The absolute *"£$%%^ next door asked the ambulance men to move their van before they went in as he was going out shortly! Hope karma whacks him firmly on the behind in this life or the next.

Had to cancel the weekend away - after dropping the display nearly slicing my toe off; and 101 other things that happened - I cancelled it. As it turns out, the episode above happened the weekend I would have been away - so maybe fate was planning my life for me?

Oh, did I mention looks like Joshua will be studying in America on a football scholarship? Go Josh!!!!!

Ella's upped her meds, bless, as still having the odd fit, which in turn has made her really sleepy.

Joseph has passed his site safety test, so hopefully he will get himself a job and start paying us back some of the money he owes.

Sent in final appeal papers for Joe's claim - now that was hard work - some of the paperwork brought tears to my eyes :(

Ben, Jeff and me, same old, same old.